Luciano (editor)
Luciano Floridi is Professor of Philosophy and Ethics of Information at the University of Oxford, where he directs the Digital Ethics Lab (DELab) of the Oxford Internet Institute. He is also Faculty Fellow of the Alan Turing Institute and Chair of its Data Ethics research Group, and Chairman of the Ethics Advisory Board of the European Medical Information Framework. He seats on the EU's Ethics Advisory Group on Ethical Dimensions of Data Protection, on the Royal Society and British Academy Working Group on Data Governance, and on Google Advisory Board on “the right to be forgotten”. His areas of expertise include the philosophy of information, digital ethics, and the philosophy of technology. Among his recent books, all published by Oxford University Press: The Fourth Revolution - How the infosphere is reshaping human reality (2014), The Ethics of Information (2013), The Philosophy of Information (2011). Luciano Floridi is Professor of Philosophy and Ethics of Information at the University of Oxford, where he directs the Digital Ethics Lab (DELab) of the Oxford Internet Institute. He is also Faculty Fellow of the Alan Turing Institute and Chair of its Data Ethics research Group, and Chairman of the Ethics Advisory Board of the European Medical Information Framework. He seats on the EU's Ethics Advisory Group on Ethical Dimensions of Data Protection, on the Royal Society and British Academy Working Group on Data Governance, and on Google Advisory Board on “the right to be forgotten”. His areas of expertise include the philosophy of information, digital ethics, and the philosophy of technology. Among his recent books, all published by Oxford University Press: The Fourth Revolution - How the infosphere is reshaping human reality (2014), The Ethics of Information (2013), The Philosophy of Information (2011).
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About Luciano (editor)
Luciano Floridi is Professor of Philosophy and Ethics of Information at the University of Oxford, where he directs the Digital Ethics Lab (DELab) of the Oxford Internet Institute. He is also Faculty Fellow of the Alan Turing Institute and Chair of its Data Ethics research Group, and Chairman of the Ethics Advisory Board of the European Medical Information Framework. He seats on the EU's Ethics Advisory Group on Ethical Dimensions of Data Protection, on the Royal Society and British Academy Working Group on Data Governance, and on Google Advisory Board on “the right to be forgotten”. His areas of expertise include the philosophy of information, digital ethics, and the philosophy of technology. Among his recent books, all published by Oxford University Press: The Fourth Revolution - How the infosphere is reshaping human reality (2014), The Ethics of Information (2013), The Philosophy of Information (2011).
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The Ethics of Medical Data Donation
This open access book presents an ethical approach to utilizing personal medical data. It features essays that combine academic argument with practical application of ethical principles. The contributors are experts in ethics and law. They address the challenges in the re-use of medical data of the deceased on a voluntary basis. This pioneering study looks at the many factors involved when individuals and organizations wish to share information for research, policy-making, and humanitarian purposes. Today, it is easy to donate blood or even organs, but it is virtually impossible to donate one’s own medical data. This is seen as ethically unacceptable. Yet, data donation can greatly benefit the welfare of our societies. This collection provides timely interdisciplinary research on biomedical big data. Topics include the ethics of data donation, the legal and regulatory challenges, and the current and future collaborations. Readers will learn about the ethical and regulatory challenges associated with medical data donations. They will also better understand the special nature of using deceased data for research purposes with regard to ethical principles of autonomy, beneficence, and justice. In addition, the contributors identify the key governance issues of such a scheme. The essays also look at what we can learn in terms of best practice from existing medical data schemes.
